Tuesday, April 3, 2012

I am beyond frustrated right now as I have attempted to update fb twice and it has failed both times. Stupid Internet service! So here i am typing with one finger on my phone trying to get this prayer request out via my blog. This has been our toughest day yet at the hospital. Brayden's health has steadily declined over the last three days. He's gone beyond pain and discomfort and is suffering. It is unbearable as a parent to stand by and watch helplessly. His pain is constant and he has minimal relief even with the morphine drip. Our GI doctor was able to speak directly to the specialist in Wisconsin today to get direction in moving forward with Brayden's treatment plan while we are here. I'm thankful for this. As of now they are going to do something called "snowing" (think hibernation) where they use meds to put him to sleep for 24 hours in an effort to reset/recharge his brain. Sleep is supposed to be one of the best things for him to recover. Although his symptoms are GI related, this is a neuro illness where the brain sends messages of pain and vomiting to the gut. If he doesn't respond to these meds, they will move him to the ICU and try this same approach by keeping him asleep with general anestesia. Please pray this works. In addition, our insurance company does not cover the specialist we are trying to see. Please pray that they accept our appeal letter. They do make exceptions under emergency conditions, and we've been told we are good candidates for this. We thank you for your continued prayers.

3 comments:

  1. Your family is in my thoughts and prayers. May Brayden start healing, the insurance come through to get him better doctors, and the weight be lifted off of you.

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  2. Praying for you amanda, GOD is the Ultimate healer and no worries about insurance It will be taken care of, HE will provide! Love you and you all are in our prayers!

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  3. Many many prayers your way- so sorry you are going through this...
    Jamie Hollis/Harris
    loveyoulongtime.blogspot.com

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